Another day at the hospital. Right now its 8:30 pm. Unfortunately it wasn't just another day at the hospital.
My mom seems to have declined even more. She did not eat today really and was not conscious that I could really tell.
We got here this morning. She loves mushrooms, so I made her scrambled eggs with sauteed mushrooms and bits of green onion and sprinkled with cheese. I was hopeful it would be a breakfast she might enjoy. She could barely eat 2 bites. She fell asleep mid-chewing. There is a bad risk of her leaving food in her mouth when she falls asleep while eating and choking.
I left her to go to painting class. It was a gorgeous day in Raleigh. I've been to both my Monday and Thursday class this week and its been so good for me to have 3 hours to "forget" my life, and remarkably my painting time has been excellent. I'm pretty happy with my 3rd painting. Even my teacher says its a very good painting and I can tell she wouldn't say it if she didn't mean it.
After painting class, I came back and have been here all day. I met with Hospice and arrangements have been made for my mother to be discharged tomorrow and be transported to her apartment. It hardly seems possible for her to go back she is completely unable to do anything for herself and is unconscious most of the time now. But there isn't much more they can do here at the hospital and except keep her "comfortable" and wait. Which, I guess we can do just as well in her "home."
She will have a nurse aide for 24 hr care, but the hospice nurse will come every day M-F, or as needed if more. The staff here has been pretty wonderful. Everyone seems to "understand." I can't imagine doing this for a living. Caring for someone who will not get better.
My mother's older sister, my Auntie Oanh (pronounced 'one') is flying in tomorrow from Pasadena. She will be shocked by my mother's condition, but my cousin has tried to prepare her. She will be staying at mother's indefinitely and that will be good. I hope my mom will be able to know she is here.
I have had such a difficult time praying. It seems odd to pray. I can blog, I can paint, I can read (got myself Amy Tan's
The Kitchen God's Wife), but I can't pray. When people ask me how they can pray I usually ask for wisdom in decision-making.
My mother is dying. I'm not mad at God. I think I am distantly in awe of Him. Here it is. Another cruel example of our fallen world. Sin exists and it promises each and everyone of us death. He gives and takes away. We all have to die. We can't escape it. This was not what He wanted for us. This was the heartache He knew would pain Him as it pains us.
My theology hasn't changed so far in this experience. It didn't change with my father's death. Perhaps I am too tired to be angry at God. And although you'll hear me say, "It is what it is" in reference to this season of life, there is something so mysterious and unbelievable in watching life slip from a human being. That is powerful. No wonder God cries to redeem us, to save us.
I don't feel the NEED to pray. Or maybe I'm too lazy. He is sovereign. He really IS. Nothing I pray will change the course set before me. I know that and I'm resigned to it, but I'm comforted by it. God is God. And isn't that enough?
It is so heartbreaking to stop and realize what I'm looking at when I look into her eyes that no longer focus on me. They stare up in the ceiling or at the wall. I wonder what must they see. Can they see? The nurses say hearing is the last thing to go. So I am sure to tell her I love her and say sweet nothings to her. It is awkward but necessary. And it is getting easier. My eyes need to smile back at her when in a fleeting moment hers might connect with mine.
Her body is so thin. She was a bitty before, but her legs seem to be the size of my arms. I hate that I am getting use to her withering body. Its weird that it doesn't shock me anymore. My aunt will be heartbroken when she sees her.
Today she needed oxygen. IV, oxygen, catheter...... its all so invasive, necessary and horrific at the same time.
Yesterday, I heard a voice in me that said, "You've lost her." And maybe I haven't, but with so little consciousness and barely any "communication" I have little hope of any normal conversation to return. But who knows, perhaps today we are taking our 3 steps backward and tomorrow we will take one step forward again.
This is sad. This is life. This is death. Nothing I can do will change that.